Welcome to my Journey…..

Only a few 100 cases Worldwide and that number is increasing, A rare often fatal nervous system disorder. This site is about our Precious Little Girl that lives her life with a rare disease called Alexander’s Disease. Read about her Struggles, Accomplishments, and the Hope we all have for our dear little Girl.

PLEASE LOOK FOR DAILY UPDATES ON MY FACEBOOK PAGE http://www.facebook.com/prayers4emilee

Our Precious Family

Our Precious Family

I am the “special” child. I am your teacher. If you allow me, I will teach you what is really important in life. I will give you and teach you unconditional love. I gift you with my innocent trust, my dependency upon you. I teach you about how precious this life is and about not taking things for granted. I teach you about forgetting your own needs and desires and dreams. I teach you giving. Most of all I teach you hope and faith. I am the “special” child.

In my mind, I am very brave. I can do anything. I fly like the wind. I am amazing. In my mind, I roar like a lion. I have lots of friends. I am 10 feet tall. In my mind, I have a lot to give. I make my mom, dad and brother smile. I am never afraid. In my mind, I am always smiling. I am a champion. In my mind I am full of dreams. I win every race. In my mind, I am very brave. I can do anything. I fly like the wind.


                    You may email me at MyTink619@comcast.net if you would like to.

fight like a girl